After suffering from countless symptoms for over 2 years I got my diagnosis today. I guess I should start with some background. In July on 2008 I noticed a new mole on my knee. A few days later it was gone, a few more days later I had a (clear as day) Bulls-eye rash. By the time I went to my doc the rash was mostly gone and she dxed it as Ring worm. The best way I can describe my symptoms is it was the flu that never went away. Neurological symptoms (tingling, numbness, headaches) soon followed.
My symptoms got worse so slowly and gradually it was hard to point out all of my symptoms, let along find out what was really wrong with me. I have so many symptoms that I honestly can't list them all. (not for a lack of trying) to give up before the war even took place. Tomorrow I am starting doxy. I have never taken it before, for anything. My entire life I have been sensitive to many abx and severally allergic to 2 (Penn & levaquin).
So, it's official.....I'm a Lymie. An exclusive club that no one truly wants to join. I don't pray, I'm not religious but last night I begged anyone who would listen (the stars) to please let me have Lyme. Not unlike many Lymies I had to become proactive in my pursuit for a dx. I had to pay out of pocket quite a bit of $ for an LLMD who doesn't accept insurance. He's worth every penny!!
I feel like I'm standing on the edge of a cliff kicking over some rocks, just staring at the bottom. I'm scared and nervous of where Lyme will take me. I have a million questions. I'm overjoyed that I finally have a DX and treatment plan. I feel extremely comfortable with my Dr and confident in his abilities. A fellow Lyme patient of his (for 15 years now) just so happened to be in his office today and I had the pleasure of speaking with her. She told me that Dr R saved her life and assured me that I was in the right place for the help I needed.
I'm overwhelmed. The most basic thing about me that anyone knows is that I like to be in control. I like to know what's going to happen long before it takes place. Now, nothing is certain, nothing is set in stone. I don't like that. I just hope the fear goes away...soon.
I will be by your side fighting everyday with you. I love you baby and will do anything it takes.
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